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FDA Rejects Disc Medicine’s Bitopertin for EPP After Questioning Surrogate Endpoint

The agency said Phase 2 data did not show that lowering PPIX predicts sunlight-exposure benefits, steering the program to await Phase 3 APOLLO results.

Overview

  • Disc Medicine received a Complete Response Letter on Feb. 13 declining accelerated approval for bitopertin in erythropoietic protoporphyria.
  • FDA reviewers acknowledged AURORA and BEACON showed significant reductions in whole blood metal-free PPIX but found no link to sunlight-exposure clinical endpoints.
  • The regulator indicated results from the ongoing APOLLO Phase 3 trial could support traditional approval, with topline data expected in Q4 2026.
  • Disc said it will request a Type A meeting and plans to respond to the CRL after APOLLO, targeting an updated FDA decision by mid-2027.
  • Shares of Disc Medicine fell more than 20% following the announcement, which came after review under the FDA’s National Priority Voucher pilot.