Overview
- Dane met with Rep. Eric Swalwell in Washington alongside I AM ALS to press for federal support, including reauthorization of the ACT for ALS law that advocates say is vital beyond its 2026 expiration.
- A widely shared video from the visit shows Dane calling for broader clinical-trial access and pledging to “fight until the last breath” to be present for his two daughters.
- Recent coverage notes slowed speech in the meeting video, paparazzi photos of wheelchair use, and reports of reduced mobility in his right arm.
- He has joined the Push for Progress campaign targeting $1 billion over three years to accelerate treatments and a potential cure.
- His wife, Rebecca Gayheart, told People the disease is taking him day by day, saying the family is working with therapists and coping with significant emotional strain.